Oh goodness...I am not even sure where I should begin with this one...so I will do the most logical thing and just start from the beginning.
Sunday I wake up with a fever of 104. Feeling terrible I sit around the house feeling terrible and getting NOTHING done. Lovely. My parents come down and have dinner and help make me feel better by just keeping the kids happy for a little while. Alright, well wake up Monday still sick and get off work around 9 and go straight to doctor. They inform me there that I have strep and that I must, she actually said MUST, get my tonciells removed. Lovely. So, I get my shot in the hip and 3 prescriptions and go pick up my children and go home. End of horrible day...or so I thought.
I get home around 3:00 in the afternoon. Jason suprised me by taking the rest of the day off to help me by taking care of the girls so that I could get some rest. I am EXTREMELY thankful for this because the events to follow would have been so much harder without the 2 hour nap I was able to take because he was home.
Jason takes Taylor and puts her down for a nap. Which should have been my first clue that she wasn't feeling well, since she NEVER ever takes 2 naps in a row. So, she goes to sleep and sleeps for almost 4 hours. DING DING....she wakes up and I already have a clue that she isn't going to be feeling well. I just kept thinking, "Damn, I gave her strep." I get her up and take her temp, it is 105.7, at this point I am starting to worry because she is just laying there and hardly moving. So, I call the oncall at our peds doctor. After not getting a call for 2 hours I back up ship and take Taylor straigh to the ER. *****This is when I tell my mother that I am FOREVER thankful for her meeting me at the ER, without her there I seriously would have LOST it.******
SPECIAL NOTE: This is when the story starts to get good....
I arrive at the ER at 8:15PM, check in and get settled for what I was sure would be a long night, but usually children are seen pretty quickly so I didn't think it would be more than 3 hours or so. My mom arrives and we enjoy watching Dancing with the Stars and some other crap while Taylor is passed out on my chest. She is at this point running a temp of 103.7, this was the lowest that it EVER got this night. At about hour 4 or maybe it was 3...I have no idea. Taylor starts having this horrible spazums. She is shaking and jumping and all this scary things...well...then she starts vomiting, so I go get a nurse and again ask what the hold up is. She takes me to some room where someone takes her temp (AGAIN) and then runs off to find someone. At 11:58PM (sorry mom you didn't get to yank the date over) we get called back to a room. We meet Dr. Trevena...seems nice enough. He asks up all this crap that we had been over again and again. Says that he thinks it is just a virus and because I told him about her vomit spell he is telling us that he thinks it is a tummy virus. But, I am assuming this is to passify my mother and I, he tells us that he will run her urine and see if it is a UTI, which is the most common thing with little baby girls. Whatever. He says that AGAIN he thinks it is just a virus and not to be upset if we leave without answers because that happens a lot. I tell him that I really am not comfortable with this because I know my daughter and I know when she isn't ok. I requested that he run some blood work to check her white blood count. He refuses telling me that he will not preform a test that he doesn't believe is needed. Something about how the "old School" doctors are the ones who go by test to see if there is an infection. **Please keep in mind that the whole time Taylor is for the most part laying accross my lap lifeless.** He then says that because she appears to be ok (laying lifeless) and since he can't find anything it must be a virus. He comes back in a little while later to say that she did have some white blood cells in her urine but he isn't convinced that she has a UTI, so we should just WAIT for the 48hr culture. So, he gives her some meds to stop throwing up and tells me...let her run a fever. We don't want to treat the fever, I should just let her run a fever. SERIOUSLY!!!!! Sends up home with "Let her run her fever, she can run a fever for up to 10 days and then it will start to ease up, this is very common with viruses." (JERK)
Well, I am not supposed to know better, I mean afterall he is a doctor!! So I take my horribly sick child home content to believe it is just a virus. At this point it is 3AM!
Next day, 12:00 in the afternoon. We wake up, because we have been awake all night. And her fever is once again 105, and having the horrible shakes again. So, I call our PCP, and make an appointment. When we get to Dr. Roberts, he takes his looks and does a strep test (which is negative) he asks me some questions about the night we spent at the ER and is blown away when I tell him how Dr. Trevena treated us and treated the whole situation. He tells me that I need to go over to the hospital and get blood work done and a chest X-Ray. He says that the blood work with check and see if it is infact bacterial and the X-Ray is to check for Pneumonia, he said just because she sounded ok doesn't mean she doesn't have it because Pheumonia has a tendency to hide. Ok, fine with me. He also gives he a shot of antibiotic because he doens't like the fact that she has been running a fever that high for so long.
OOOOOOk, we are now at about 330 in the afternoon and sitting at the hospital again. After another terrible wait and messup caused by paperwork not correctly done, we finish up. I report my complaints to everyone who will listen to me and finally get the Charge Nurse, who takes my statement with the promise to get back to me.
We go home.
Her fever continues to be high, but we were told that the shot can take up to 24 hours.
The next morning we wake up and she is FEVER FREE...thank god...well know we know that it is BACTERIAL, since the shot broke her fever. We go throughout the day with her slowly starting to feel better. At 2:15 Jason takes her to the doctor to get the results from the day before. AND....drum roll please...she has PHEUMONIA.
At this point I just am blown away because of how wrong Dr. Trevena was. I keep thinking if I would have listened to him and waiting the 10 days he said then would Taylor still be alive???
We are on day 3 or 4, and now that we have the cause and all this wonderful stuff, she has been treated correctly with a high dose antibiotic. She kept her dinner down for the first time tonight. So, here is to hoping that she is finally getting better.
I have been on the phone all day talking to different his and hers of the higherups at the hospital. I was last told that Dr. Trevena was told this morning by the Cheif of Staff of his mistake. I am awaiting a call tomorrow from the head of the ER to find out where we are now. But I will NOT sit by and let this be dusted under the rug. I am beyond pissed that my daughter was treated and dismissed without listening to my as her mother!! I will keep everyone updated on where we are with all this. But, as of right now....Taylor is doing SOOO much better!!
****Once again, I need to thank my mother SOOOO much for sitting at the ER with me from 9pm-3am, going home to frost her cupcakes and then go to work almost 3 hours later. I really don't know what I would do without you! Your the best mommy ever! Thank you thank you thank you!!! MUAH!
And I have tried to spell check this, I wrote it very quickly and all that good stuff, so I am so sorry for all the mess ups and misspelled words. :)
Thursday, March 12, 2009
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